we were married 08-08-08, and when buying my dress the chinese girl told me that 8 is lucky!! :) so i was so excited starting the marriage on a good note!...so i always figured that 8 would be our lucky number.. :) lately i have started to change my mind, so i figured since everyone always says how 7 is a lucky number {vegas} that could be our back up! NOPE!!.well....now 7 is the amount of NEW tumors in Jasons brain...with a now total of 8 tumors in jasons brain.... so..now its official, we have no lucky numbers....
we found out friday may 14, that Jason now has 7 new brain tumors... which we found from the MRI that they lost on tuesday!! which i now believe that girl should lose her job! but thats just me.... we were stuck at the hospital pretty much all day! our appointment was at 11, we got there on time :) had to go get labs done...which took forever, the one guy in there was freakishly slow!!! so they called in another dude... thank goodness, so we finally got done with labs around 1120, and back to the waiting room... we didnt see the dr until around 1240... UGH!!! i am NOT a patient person.... especially when we were getting test results!! but i believe they made us wait so long so they could take their time with us... our main cancer dr showed us the MRI then called in our neuro dude to decide what to do.... He told us that there was a BIG chance we would be admitted that day...thank goodness we werent....
we spent probably a good hour talking to the drs. Jason said that when the drs finally came back {after calling the neuro dude over} they were picking who had to tell us the bad news.. {i was in the potty, like always} its obvious that they all have troubles talking to us, unless its good news. When its bad {like it always is} they dont look us in the eyes while they talk to us... mostly the floor, occasionally they will look at us but only for a second. but who can blame em...not many people know what to say to us, and i can see why, we dont know what to do ourselves...or what to say, we mostly joke about everything, but we have to keep a smile on our faces! :))
we didnt get a body MRI done, so we arent exactly sure how his lungs are looking, but we cant help but wonder if there are new spots in the lungs since 7 new ones have shown up in his brain, in just one month..but we have another month to wait on that one...
we forgot to ask about the clinical trial... and obviously so did the dr, since the brain is such a huge scare..so next time we will find out about that!!
So the plan now is full brain radiation.... it will last 3 weeks, everyday monday-friday, it takes about 15-30 minutes for each dose, so we will drive down get zapped and get to come home, they told us that it will make jason tired, scalp tenderness, some people claim they can taste it or smell it, and also by the 3rd week...jason will LOSE HIS HAIR!! :(( good thing he got it donated so there isnt much left to lose!!! also some people get sick but they said over all jason should feel pretty good and be able to work during... just have to leave a little early to make it to SLC in time for our appointments. Jason got all set up for it friday {may 14} we were asked it we wanted to start that day n get another dose on saturday, but the dr didnt feel that starting friday or waiting till monday would do much of a difference, so we chose to wait until monday and try to enjoy our weekend. we also start the process of removing that tumor in the bronch, so he will be injected with the photo chemical and start radiation monday...
if full brain radiation doesnt work we will do stereotactic {radio} surgery on each tumor, like they did on the first tumor back in January..so were hoping that full brain radiation will kill the tumors so we dont have to do the radio surgery as well...
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