Hope and Jason: January 25, 2011

Tuesday, January 25, 2011

January 25, 2011

we met with out neuro dudes today, Dr J and Dr S, to go over the scan that was done last thursday {1-25-11} the scan showed that the tumors have grown and there are new ones.

we were given 2 options. full brain radiation, or home health/hospice.

we have already done full brain radiation and it did nothing, and they dont believe it will do anything now, and if it did it would be temporary. after finishing full brain radiation in June we were given hospice as an option and it made jason miserable, sick and exhausted, he slept all the time i can only imagine what it would do now...

we chose home health/hospice

4 comments:

AnonymousJanuary 25, 2011 at 7:51 PM
My dearest Jason and Hope, I am so very sorry ...you have both been so very strong and I know I would have never been able to be as STRONG as you both have been through all of this ...you both have really opened my eyes about life and love and strength!You know I am here for you any time, anyway, anyplace♥♥♥all my love and prayers for you love debi
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AnonymousJanuary 25, 2011 at 9:06 PM
Dear Hope and Jason,

No one can even comprehend what you are going through! He has fought so hard and you are amazing how hard you have fought for him too! please know there are many who are crying with you!
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AnonymousJanuary 25, 2011 at 10:02 PM
This is incredibly hard to accept after following your long hard-fought battle which you've both endured with amazing courage, strength and resilience. We've cheered you on and wept at the set-backs along the way. I hope there is some comfort knowing your pain is shared by all of us who love you both very, very much.
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brandibJanuary 31, 2011 at 10:31 AM
I am so sorry!!! There is no way to comprehend what you are going through. My hearts and prayers are with you. You guys have taught me how to love and live for the now and to appreciate everything. I appreciate your sweet spirits and great attitude during this horrible time in your life. Please Please Please if I can be of any assistance at all, even if it just to come be a friend, let me know. Love you guys!!!
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our cancer story {beginning}

well it all started with a seizure December 22, 2009. After amulance, ER, ambulance, ER, ICU, Neuro care unit, we were informed jason had Stage IV metastasized Melanoma. there was one tumor in his brain and 7 in his lungs. And were sent home on Christmas eve {great way to spend the holiday!} With the course of treatment chosen then jason had a 6-8% chance of living and would be lucky to make ten years {oh! he was 21 at the time} well, that treatment{IL2} was tried...once and was/is no longer an option.so Jason received full brain radiation {and lost ALL of his beautiful hair} In June of 2010 2 days after finishing radiation we were given the option of hospice {they could no longer do anything for us} so we found another hospital {CTCA} in Arizona and shortly after started a clinical trial {ipilimumab} in Idaho. Brain surgery the 2 of DEC, to remove 2 of the 6 tumors. came home the 4 :) got the pathology report the 8, which informed us the first/main tumor was dead but the 2nd was still alive {which leads us to believe all the other 6 tumors are alive} now we are waiting to decide whether jason will undergo a 2nd brain surgery or more radiation..Jason had to quit the trial due to steroids and surgery so now we are waiting to hear when/if he starts it back up..this is definitely "in a nut shell" version of our cancer story...but it gives somewhat of a background without having to read the entire blog! :)