Hope and Jason: Dilantin

Friday, January 14, 2011

Dilantin

i LOVE when drs realize im in the right, and they are WRONG!!!! :)) Jason is now being weened off of the Ditantin {thank god!!} the dose prescribed is 200 mg twice a day, so starting tonight he will be on 100 mg twice a day for a week, then down to 100 mg once a day for a week...and then DONE!! it will take longer than i expected but he will be off of it and thats what matter! im really hoping that after he gets off of this drug jason will get out of zombie mode.

He has been a little better, i got him out of the house the other night, we went to the movies and dinner with a few friends...it was good to get out and have some different scenery :) altho it wiped him out the next day and he slept ALL day... but one good night was definitely worth it.

1 comment:

JessJanuary 18, 2011 at 11:10 AM
Good to hear. Don't think yourself naive, follow your gut instincts on something like that.

I've haphazardly read through your blog over the last few months. Life just took you by the nose and said "You're coming with me!" You guys are awesome.

I want to say something encouraging but I'm sure you've heard it all, and reading through your posts, you do a darn good job by yourself. You're a dedicated wife. Jason's a lucky guy.

Good luck with the upcoming surgery.
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our cancer story {beginning}

well it all started with a seizure December 22, 2009. After amulance, ER, ambulance, ER, ICU, Neuro care unit, we were informed jason had Stage IV metastasized Melanoma. there was one tumor in his brain and 7 in his lungs. And were sent home on Christmas eve {great way to spend the holiday!} With the course of treatment chosen then jason had a 6-8% chance of living and would be lucky to make ten years {oh! he was 21 at the time} well, that treatment{IL2} was tried...once and was/is no longer an option.so Jason received full brain radiation {and lost ALL of his beautiful hair} In June of 2010 2 days after finishing radiation we were given the option of hospice {they could no longer do anything for us} so we found another hospital {CTCA} in Arizona and shortly after started a clinical trial {ipilimumab} in Idaho. Brain surgery the 2 of DEC, to remove 2 of the 6 tumors. came home the 4 :) got the pathology report the 8, which informed us the first/main tumor was dead but the 2nd was still alive {which leads us to believe all the other 6 tumors are alive} now we are waiting to decide whether jason will undergo a 2nd brain surgery or more radiation..Jason had to quit the trial due to steroids and surgery so now we are waiting to hear when/if he starts it back up..this is definitely "in a nut shell" version of our cancer story...but it gives somewhat of a background without having to read the entire blog! :)