Hope and Jason

Sunday, April 17, 2011

it will always be Hope and Jason. i know Jason will always be with me.{i feel him everyday} we have an amazing strong bond, LOVE for each other, and made a connection that some will never make. and that will never end. but i cannot write on the hope and jason blog...i will add things now and again i am sure...things that include the both of us....but right now i feel its my fight. my fight against anger, sadness, loneliness...and to learn to live again. therefore i have made a blog for me, for my fight.

3 comments:

CaileyApril 18, 2011 at 6:24 AM
And we all understand! :o) thanks for letting me know Hope.
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PattyApril 18, 2011 at 4:29 PM
That's ok. You have to do what you have to do, and we need to understand.
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The Kelly'sMay 18, 2011 at 11:32 PM
Hope
You have every right to be mad and upset and hurt and all the above!!! Write all that you need to and anyone who says that you shouldnt needs to back off!!!
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our cancer story {beginning}

well it all started with a seizure December 22, 2009. After amulance, ER, ambulance, ER, ICU, Neuro care unit, we were informed jason had Stage IV metastasized Melanoma. there was one tumor in his brain and 7 in his lungs. And were sent home on Christmas eve {great way to spend the holiday!} With the course of treatment chosen then jason had a 6-8% chance of living and would be lucky to make ten years {oh! he was 21 at the time} well, that treatment{IL2} was tried...once and was/is no longer an option.so Jason received full brain radiation {and lost ALL of his beautiful hair} In June of 2010 2 days after finishing radiation we were given the option of hospice {they could no longer do anything for us} so we found another hospital {CTCA} in Arizona and shortly after started a clinical trial {ipilimumab} in Idaho. Brain surgery the 2 of DEC, to remove 2 of the 6 tumors. came home the 4 :) got the pathology report the 8, which informed us the first/main tumor was dead but the 2nd was still alive {which leads us to believe all the other 6 tumors are alive} now we are waiting to decide whether jason will undergo a 2nd brain surgery or more radiation..Jason had to quit the trial due to steroids and surgery so now we are waiting to hear when/if he starts it back up..this is definitely "in a nut shell" version of our cancer story...but it gives somewhat of a background without having to read the entire blog! :)