Hope and Jason

Friday, March 19, 2010

well its been a while...not much has been going on... the silent auction at the home and garden show is today and tomorrow! and there is a benefit dinner, auction, raffle thing in Stone, Idaho on April 9..

we went to the movies the other day with randy, tina, whit, n greyson..watched alice in wonderland {friggin weird movie!} lol it was very strange...one that you needed to be high to enjoy! lol

i straightened jasons hair the other night {holy long!} hopefully it wont take much more time to grown long enough to donate! mine is buggin me too! but im waiting until jasons is long enough then we are both going to donate our hair {i dont want jason to have longer hair than i, that would be weird!..thats why im waiting}

We went up to the silent auction today to take a look around, see what was all donated... theres so much stuff!!! a lot of fun stuff, i hope everyone who goes feels the same way! {if not we informed deb we have first dibs! lol} we were told that there was even more things that had been donated that werent there... so they were going to give them to us and we would fill our night by putting them on KSL or Ebay or something like that.. {which will be nice, give us something to do} everything was/is set up really nice, altho the main sign for the benefit, is wrong, jasons cancer is metastasized melanoma to the brain lungs and esophagus, not cancer of each.. {i know it doesnt seem there is a difference...but there is.} im way excited to see how it all turns out!!

we havent had much drama the past week {thank goodness!} altho i feel like i have been forgotten, put aside... im treated as if i dont exist, i have no name, and that i am not a part of this. i personally feel that i am the person {next to Jason} that is feeling this the most, i am the one that is here with him every day every night, throught the good moments and the bad, im the one that is holding his hair back while he is vomitting, im the one sitting in the hospital with him for an entire week! {when others wont visit!!} IM HERE!!! I AM A PART OF THIS!!! {i just want people to realize this.and start treating me as if they know!!}

Thats pretty much all that has been going on with us the past week, we have just been working our lives away!!

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our cancer story {beginning}

well it all started with a seizure December 22, 2009. After amulance, ER, ambulance, ER, ICU, Neuro care unit, we were informed jason had Stage IV metastasized Melanoma. there was one tumor in his brain and 7 in his lungs. And were sent home on Christmas eve {great way to spend the holiday!} With the course of treatment chosen then jason had a 6-8% chance of living and would be lucky to make ten years {oh! he was 21 at the time} well, that treatment{IL2} was tried...once and was/is no longer an option.so Jason received full brain radiation {and lost ALL of his beautiful hair} In June of 2010 2 days after finishing radiation we were given the option of hospice {they could no longer do anything for us} so we found another hospital {CTCA} in Arizona and shortly after started a clinical trial {ipilimumab} in Idaho. Brain surgery the 2 of DEC, to remove 2 of the 6 tumors. came home the 4 :) got the pathology report the 8, which informed us the first/main tumor was dead but the 2nd was still alive {which leads us to believe all the other 6 tumors are alive} now we are waiting to decide whether jason will undergo a 2nd brain surgery or more radiation..Jason had to quit the trial due to steroids and surgery so now we are waiting to hear when/if he starts it back up..this is definitely "in a nut shell" version of our cancer story...but it gives somewhat of a background without having to read the entire blog! :)