February 21, 2010

the past week has been a pretty good one. Jason has been up eating real food, usually along with at least one shake a day. He is still big on cereal, he could eat it all day if i let him! were sticking strong with a vegetarian diet, well he is better than i! {we have chicken nuggets that shouldnt go to waste! ;)} Jason is actually closer to vegan that just vegetarian. He still cant see, but he says he can still see shadows, so it hasnt gotten any worse, which is a BIG plus! and earlier today his pupils were dilating, so they are now reacting to light!!

Thursday, i was calling around to find a place to get jasons port flushed, it is supposed to be flushed every 6 weeks...and it was time! i called about 10 different people! {no joke!!} and finally got an appointment made at the infusion clinic at the Logan Regional Hospital. We ordered a wheel chair for jason, so we can go out and about and not worry about how we actually going to get Jason around. Hopefully it will be here early next week.

Friday, jason had is port flushed :) then we went to walmart. we had to get some groceries {its hard to change your diet when you dont have the healthy food!} and we had to get material to make blankets for the benefit this friday. {its for a close family that helped so much at our benefit who is now going thru hell} i didnt get all the shopping done, Jason was tired, the day started out good but went down hill a little later in the afternoon and the wheelchair wal mart offers sucks! so that didnt help matters much.

saturday Jennifer and dallas came over, jennifer hung out with jason while dallas and i went grocery shopping. now we are somewhat set on having a vegetarian diet! :)

Sunday started out pretty good, real early! Jason ate lots, cereal, shake {snack}, chili {lunch} and veggie noodles for dinner... He was having a great day until about 6 pm he started getting a headache, well i guess i should say his headache started getting worse. he went to bed, but got up for dinner, then went back to bed. i woke him up for his pills around midnight, then about a half hour later gave him his ASEA {its like water} he finished drinking it, layed back down, and PUKED EVERYWHERE!!! we HATE having those headaches, he always ends up puking from the pain :( it was a rough night...not much sleep. jason also fell about 3 times, his legs get really weak, and when his head hurts so bad he loses his balance quicker...

so far today its not as bad but close. his head is killing him :( he has gotten up to go to the bathroom but thats it. he hasnt eaten yet, he is just sleepin...jason got up around 5 ate some dinner, but puked it all up after he finished :( and went back to bed! he got back up aroung 730 ate a bowl of cereal and so far has kept it down!! woot woot he is talking more, so his head must be filling a bit better :)now he is complaining of his whole body hurting...got to get him up and moving around so it will hurt less! OH AND!!! jason was weighed thursday, and has lost ONLY 1.3 lbs in the last 9 days!!! woohoo!!!! {the weeks before he was losing 10+ per week!}