Hope and Jason: July 2011

Sunday, July 31, 2011

today was Jason's birthday, i started having issues last night while reading the comments on his FB wishing him a happy bday...but overall i think i did pretty good with the day...{the next week will be hard/er}

we had his party at the cemetery, had a pretty good time, didtn start crying until i was writing wesleys message for jason on a balloon...then i lost it, gained control, lost it again...

we let go 23 balloons, Jason would be 23 today...we all wrote a message on them...n let them go at the end of happy birthday. there wasnt a dry eye by the end of happy birthday, i didnt make it thru happy...

all the balloons

reubens message to Jason!

timari n family message

{everyone wrote a message, i just got pix of these for timari, since she couldnt be there...}

me with my balloon

letting our balloons go

ritz from timari ♥

Wednesday, July 13, 2011

Jason's birthday is at the end of the month {30} and i want to do something. as of right now, im planning a balloon release and cake n ice cream up at the cemetery....just unsure of the time, dont want it to be in the middle of the day, n not too early so probably early evening :)

so this is your invite if you want to come, but let me know so we have enough stuff for everyone....

our cancer story {beginning}

well it all started with a seizure December 22, 2009. After amulance, ER, ambulance, ER, ICU, Neuro care unit, we were informed jason had Stage IV metastasized Melanoma. there was one tumor in his brain and 7 in his lungs. And were sent home on Christmas eve {great way to spend the holiday!} With the course of treatment chosen then jason had a 6-8% chance of living and would be lucky to make ten years {oh! he was 21 at the time} well, that treatment{IL2} was tried...once and was/is no longer an option.so Jason received full brain radiation {and lost ALL of his beautiful hair} In June of 2010 2 days after finishing radiation we were given the option of hospice {they could no longer do anything for us} so we found another hospital {CTCA} in Arizona and shortly after started a clinical trial {ipilimumab} in Idaho. Brain surgery the 2 of DEC, to remove 2 of the 6 tumors. came home the 4 :) got the pathology report the 8, which informed us the first/main tumor was dead but the 2nd was still alive {which leads us to believe all the other 6 tumors are alive} now we are waiting to decide whether jason will undergo a 2nd brain surgery or more radiation..Jason had to quit the trial due to steroids and surgery so now we are waiting to hear when/if he starts it back up..this is definitely "in a nut shell" version of our cancer story...but it gives somewhat of a background without having to read the entire blog! :)