Hair cut!!!

so i was checking the blog, for comments...n to make sure all was up to date...n i realized i didnt post about our hair cuts!! :)) we donated our hair monday may 3! a girl i work with also cuts hair...so she did it for us! :) and is sending it to pantene beautiful locks. we were going to send it to locks of love UNTIL!!! we found out that locks of love doesnt donate their wigs to cancer patients...they sell them!!! but pantene donates the wigs, so were/jess is sending it there!! :))

we completely chopped off our hair!! and i got highlights...which i LOVE!!!

jason's hair...so short!! but very nice.... :))

my hair all gone!

getting all foiled up!

the outcome!! LOVE IT!!!

i look very annoyed...but it took jason like a million tries to take this pic! lol

Thursday May 6

well we went to the Huntsman this morning for Jason's surgery, well at least we thought thats what was going to happen.... but it wasnt...they just checked out the growth in his throat, and made a game plan for next week we are doing to PDT, so we aer going to have a LONG week....

Monday-we go down so jason can be injected with the stuff to kill the tumor

Tuesday-we meet with the neurosurgeon, and hopefully make a game plan on what to do about the brain tumor, we are going to propose the idea of just going in and removing it, we are sick of all the crap it is causing!!

Wednesday-we go down and the light gets shined on the tumor in the airway to activate the chemical that was injected on monday.

Thursday-as of now this day is still open {who knows how long that will last tho!!}

Friday- MRI, appointment with main cancer dr to see how everything is looking {mostly to check growth} and removal of {hopefully dead} tumor in airway.

see...long disgusting week ahead of us... altho it isnt even close to chemo week, so we will be able to handle it with no problems... hopefully....

Wednesday May 5

>Another seizure to add to the list.... Jason was asleep on the couch, at exactly 8:07 he started to seize. he started out laying on his back on the couch and ended up on his knees with his face into the couch, where i, once he stopped seizing, had to pull him down onto the floor and roll him over to his side/back. he bit his tongue extremely bad this time, and bled all over the place!! usually he comes back to within 15 minutes of the seizure, the last one he had {april 1} he walked out to the ambulance! this one was different...he faught the entire ride up to the hospital! we had to stop about half way and get one of the firemen into to ambulance to help the 2 who were already in the back, hold jason down. {they send a firetruck when i call..} they couldnt get vitals on him, they had the IV in, went to tape it down and jason ripped it out.... he finally started coming to as soon as we pulled into the hospital parking lot... he was out for a good 40 minutes...

We have to go to the ER everytime Jason seizes to have a CT done to be sure that there is no bleeding in his brain, {that is what caused the first seizure}

This may come off as extremely strange, morbid and just awful...but i videoed this seizure, well the second half... Jason wanted to see how it was, since he is completely unconscious for it. its only the second half of the seizure so he had calmed down a lot, and also i didnt get the creepy sounds he makes in the beginning {they are probably what scare me the most...i call it his seizure breathing.} i will try to upload it here, jason put it on facebook. but WARNING!!!! this is very disturbing for some people, so if you get freaked out easily.. DONT WATCH!!! and also, i dont need any rude comments of videoing it or anything like that, jason wanted to see it, and i was on the other phone with 911 while recording.

click here for the seizure video and please keep all nasty comments to yourself, i again dont need them!!

after a few hours in the ER about 10 minutes with the dr and a mini family reunion! we got to come home, the ct showed no bleeding {thank goodness} they upped his keppra {antiseizure} and just told us to follow up with our neurosurgeon...which we do on tuesday May 11.

if you have any questions feel free to ask! :)

Jason's poor tongue :(

dr appointment Tuesday May 4

well, we met with the dr who removed the tumor from jason's airway in January, on Tuesday. we decided that it would be best to go in and remove it once again. It is about half the size as it was in January, and growing. He talked of this treatment, photodynamic therapy {PTD}

in the first step of PDT for cancer treatment, a photosensitizing agent is injected into the bloodstream. The agent is absorbed by cells all over the body but stays in cancer cells longer than it does in normal cells. Approximately 24 to 72 hours after injection , when most of the agent has left normal cells but remains in cancer cells, the tumor is exposed to light. The photosensitizer in the tumor absorbs the light and produces an active form of oxygen that destroys nearby cancer cells. In addition to directly killing cancer cells, PDT appears to shrink or destroy tumors in two other ways . The photosensitizer can damage blood vessels in the tumor, thereby preventing the cancer from receiving necessary nutrients. In addition, PDT may activate the immune systemto attack the tumor cells.

we are hoping to be able to do this, we just have to get the OK from the radiologist, which im sure we will have no problem....and hopfully it will completely kill the tumor in jason's airway. We wont be able to have it work on any other spots due to the facts that a light has be shown on the tumor to activate the chemical... but one down 6 more to go!! :) {hopefully}

So thursday is the planned day to go in and start all this :)

birthday weekend....

well my birthday was on saturday...n of course i had to work!!! {so did jason} but we had friday off so we improvised! :) thursday night we stayed at the anniversary inn {LOVE IT!!!} we are lucky enough to have jasons cousin work there so she hooked us up with an awesome deal! :) and we are very thankful for it! {thanks stephanie!!} it was so nice to have a wonderful relaxing evening {even tho it was like 5 minutes from our house! lol} well we stayed in "la hacienda" {the rooms are themed!!} it was amazing and HUGE!!! spanish styled room...with cheesecake and cider {eww} waiting for us, a long with chips and salsa! :)) {i took pics of the room but am having troubles uploading them...so i will try again later}

i got an uber cute watch! {which i LOVE} and a new camera!! :) a professional type one, none of this cheap digital walmart cameras anymore...im movin up in the world!!

SUNDAY.....

sunday pretty well sucked {seriously} i wasnt feeling well, mostly just having an off day.... but anyways...went to work, about 10 minutes into my shift i FREAKING FALL!!!! ya right on my TAILBONE!!! it hurt soooo bad!!!! {i was showering a resident and fell in the shower :(} thankfully kimberly covered my shift and i went home! and pretty much died on the couch. after jason got off work i made him take me to the dr, {instacare, i figured the terrace would thank me since they would be paying and instacare is much cheaper than the ER} they did some x-rays, drug test {since it was work related} and came to the conclusion that it was just bruised {extremely bad!!!} and now its thursday night and still kills!! i feel for those who have broken their tailbone...i wouldnt be able to handle it!!

HUGE bathtub!!! pretty sure i spent most of my time here! :)

GIANT bed!! i had to jump to get on it lol

to the right

in front of the door

hammock when you first walk into the room...{to your left}

meeting with the radiologist....

well we met with the radiologist last week...which i strongly believe was a WASTE OF OUR TIME!!! {grrr!!} she just kept telling us how she doesnt want to do radiation to the lungs right now, its not bad enough YET!!!!

i am so SICK N TIRED of hearing that!!! now i know that they get cases that are much worse than jasons...but they need to realize from our point of view... {in december he had a 6-8% chance of beating this {n he still does}} we dont want it to get any worse, we want it taken care of NOW!!! not wait to see how it grows..{n oops we waited to long theres nothing we can do}....but they act like it magically got better..n now we can wait forever or at least a few more months for treatment... she wants to wait and see how it grows over the next few months... n i feel if she wants to know how it grows she can just get the scans that have been taken since december n watch those as much as she wants!!!

but...if radiation does become the treatment of choice, we are getting a NEW dr...we do NOT like her at all!!! and also, from our understanding if we go that route they will only zap 2 spots {theres 7 total} which confused us!!{and leaves the other 5 spots.... which we have no idea what would happen with them} treatment of radiation will take about three weeks, jason would receive a zap every day monday through friday... which would pretty much suck because its on a good day an hour n half drive for a 5 minute zapping!

but as of now that isnt much of a choice, she said that she would rather us get into a clinical trial {which main cancer dr wanted to do if that radiation didnt take} but before that...we are meeting with the dr that removed the tumor in jasons airway back in january {it is growing back!} we meet with him today {may 4} in hopes that he can go in and remove it once again....

the tumor that is growing back in jasons airway has started to cause problems again.... jason has been complaining of his chest hurting lately along with having a cough :( so im hoping that the dr can go in and remove it again {or at least most of it...he couldnt remove that whole thing in january because it has grown through the wall of the airway, so if he remove the entire thing it would cause some major problems and discomfort...}

i think thats all we got from that dr appointment...ive been slacking!! lol but if you have any questions feel free to ask!!